Activities and Nurses' Role in Empowering Parents on Treating Children with Cancer

Dina Rasmita(1*)
(*) Corresponding Author
DOI : 10.30604/jika.v6i2.466


Children with cancer will hospitalize for a long time, so it takes the role of the family as an integral part that cannot be separated from the child. The family are a partner in childcare. Family-centred care is an important part of childcare because the parent is a source of strength and a supportive child. The point of family-centred care is empowering families in childcare. Empowerment is the most important part of caring for nurses, families, and patients. Nurses are not only involved in daily childcare but also nurse plays a role in empowering parents in caring for children with cancer. The study aims to explore the activities and roles of nurses in empowering parents to care for children with cancer based on the nurse perception. The research design was a qualitative design with a phenomenological approach. Participants involved in this study were six nurses who served in the childcare room with cancer selected by purposive sampling technique. Data were collected by in-depth interview method using semi-structured interview guidelines. Data analysis with the analysis stage according to Colaizzi. The results of this study found four themes about the activities and roles of nurses in empowering parents in caring for children with cancer, including providing education, providing support, involving parents in caring for children, involving parents in decision making. Nurses can provide support according to the needs of parents and increase collaboration with parents in caring for children.



Abstrak: Anak dengan kanker akan menjalani hospitalisasi dalam jangka waktu yang lama, sehingga dibutuhkan peran keluarga sebagai bagian integral yang tidak terpisahkan dari anak. Keluarga adalah mitra dalam perawatan anak. Perawatan berfokus pada keluarga adalah bagian penting dalam perawatan anak karena orangtua merupakan kekuatan dan dukungan utama bagi anak. Inti dari perawatan berfokus pada keluarga (PBK) adalah memberdayakan keluarga dalam perawatan anak. Pemberdayaan merupakan bagian terpenting dalam keperawatan baik untuk perawat, keluarga, dan pasien. Perawat tidak hanya terlibat dalam perawatan anak sehari-hari, tetapi perawat juga berperan dalam melakukan pemberdayaan orangtua dalam merawat anak dengan kanker. Penelitian ini bertujuan mengeksplorasi aktivitas dan peran perawat dalam pemberdayaan orangtua merawat anak dengan kanker berdasarkan sudut pandang perawat. Desain penelitian ini adalah desain kualitatif dengan pendekatan fenomenologi. Partisipan yang terlibat dalam penelitian ini adalah enam orang perawat yang bertugas di ruang perawatan anak dengan kanker dipilih dengan teknik purposive sampling. Pengambilan data dilakukan dengan metode wawancara mendalam menggunakan pedoman wawancara semi terstruktur. Analisis data dengan tahapan analisis menurut Colaizzi. Hasil penelitian ini menemukan empat tema tentang aktivitas dan peran perawat dalam pemberdayaan orangtua dalam merawat anak dengan kanker di antaranya yaitu memberi edukasi, memberi dukungan, melibatkan orangtua dalam merawat anak, melibatkan orangtua dalam pengambilan keputusan. Perawat dapat memberi dukungan sesuai dengan kebutuhan orangtua dan meningkatkan kolaborasi dengan orangtua dalam merawat anak.


peran perawat; anak; kanker; pemberdayaan


Abdulbaki, M. A., Abd, Y., Gaafar, E., & Waziry, O. G. 2011. Maternal Versus Pediatric Nurses Attitudes Regarding Mothers’ Participation in the Care of Their Hospitalized Children. Journal of American Science, 7(9).

Beddells, E., Bevan,A. 2015. Roles of nurse and parents caring for hospitalised children. Journal Nursing Children and Young People, 28 (2), 24-28.

Berube, K.M., Fothergill-Bourbonnais, F., Thomas, M., Moreau, D. 2014. Parents’ Experience of the Transition with their Child from a Pediatric Intensive Care Unit (PICU) to the Hospital Ward: Searching for Comfort Across Transitions. Journal of Pediatric Nursing, 29, 586–595.

Borhani, F., Najafi, M.K., Rabori, E.D., Sabzevari, S. 2011. The Effect of family-centred Empowerment Model on Quality of Life of School-Aged Children 171172 with Thalassemia Major Life of School-Aged Children with Thalassemia Major. Iran Journal Nursing Midwifery, 16(4): 292–298.

Cresswell, J.W. 2014. Penelitian Kualitatif & Desain Riset. Pustaka Pelajar: Yogyakarta.

Coyne, I., Murphy, M., Costello, T., O’Neill, C., Donnellan, C. 2013. A Survey of Nurses’ Practices and Perceptions of Family-Centered Care in Ireland. Journal of Family Nursing, 19(4),469-488.

Coyne, I. 2008. Disruption of parent participation: Nurse’s strategies to manage parents on children’s wards. Journal of Clinical Nursing. 17, 3150–3158. doi: 10.1111/j.1365-2702.2006.01928.x.

Da Silva, F.M., Jacob, E., Nascimento, L.C. 2010. Impact of Childhood Cancer on Parents Relationship: an Integrative Review. Journal Nursing Scholarship. 42(3):250-61. doi: 10.1111/j.1547-5069.2010.01360.x.

Foster, M., Whitehead, L., Maybee, P. 2010. Parents’ and Health Professionals' Perceptions of Family Centred Care for Children in Hospital, in Developed and Developing Countries: A Review of the literature. International Journal of Nursing Studies, 47: 1184–1193. DOI: 10.1016/j.ijnurstu.2010.05.005

Ghazavi, Z., Minooei, M.S., Abdeyazdan, Z., Gheissari, A. 2014. Effect of Family Empowerment Model on Quality of Life in Children with Chronic Kidney Diseases. Iran Journal Nursing Midwifery, 19(4), 371-375.

Gonya, J., Martin, E., McClead, R., Nelin, L., Shepherd, E. 2014. Empowerment Programme for Parents of Extremely Premature Infants Significantly Reduced Length of Stay and Readmission Rates. Acta Pediatrica, 727–731. doi: 10.1111/apa.12669.

Hesham, M.S., Mansi, Y., Abdelhamid, T.A., Saleh, R.M. 2016. Impact of a health education tool on enhancing communication between health providers and parents of neonates in intensive care in Egypt. Journal of the Chinese Medical Association, 79, 394-399. doi: 10.1016/j.jcma.2016.01.018.

Hockenberry, M.J., Wilson, D. 2011. Wong’s Nursing Care of Infants and Children, 9 th edition, Mosby Elsevier: Philadelphia.

Hulme, P.A. 1999. Family Empowerment: A Nursing Intervention with Suggested Outcomes for Families of Children with a Chronic Health Condition. Journal of Family Nursing, 5(1), 33–50.

Kastel, A., Enskar, K. 2013. Family Participation in Childhood Cancer Care. Journal of Nursing Education and Practice, 4(3),112–124.

Laschinger, H.K.S., Gilbert, S., Smith, L., & Leslie, K. 2010. Towards A Comprehensive Theory of Nurse/Patient Empowerment: Applying Kanter’s Empowerment Theory to Patient Care. Journal Nursing Management, 18, 4– 13.175. doi: 10.1111/j.1365-2834.2009.01046.x.

Loghmani, L., Borhani, F., & Abbaszadeh, A. 2014. Factors Affecting The NursePatient's Family Communication In Intensive Care Unit Of Kerman: Qualitative Study. Journal of Caring Sciences, 67-82.

MacKay, L.J. & Gregory, D. 2011. Exploring Family-Centered Care Among Pediatric Oncology Nurses. Journal of Pediatric Oncology Nursing, 28,43– 52. doi: 10.1177/1043454210377179.

McKenna, K., Collier, J., Hewitt, M., Blake, H. 2010. Parental Involvement in Paediatric Cancer Treatment Decisions. European Journal of Cancer Care, 19(5), 621–30.

Mianaei. S.J., Karahroudy, F.A., Rassouli, A., Tafreshi, M.C. 2014. The effect of Creating Opportunities for Parent Empowerment program on maternal stress, anxiety, and participation in NICU wards in Iran. Iranian Journal of Nursing and Midwifery Research, 19 (1).

Palliadellis, P., Cruickshank, M., Wainohu, D., Winskill, R., Stevens, H. 2005. Implementing family-centred care: an exploration of the beliefs and practices of pediatric nurses. Journal Australian Advance Nursing, 23(1), 31- 6.

Perry, S. E., Hockenberry, M. J., Lowdermilk, D.L., Wilson, D. 2014. Maternal Child Nursing Care. Fifth Edition. Elsevier: Canada.

Panicker, L. 2013. Nurses’ Perceptions of Parent Empowerment in Chronic Illness. Journal Contemporary Nurse, 45(2), 210–219. doi: 10.5172/conu.2013.45.2.210.

Rodgers, C.C., Stegenga, K., Sachse, K., Kelly, K.P. 2016. Processing Information After a Child’s Cancer Diagnosis—How Parents Learn: A 177 Report From the Children’s Oncology Group. Journal of Pediatric Oncology Nursing, 33(6) 447–459. doi: 10.1177/1043454216668825

Salmani, N., Hasanvand, S., Bagheri, I., Mandegari, Z. 2017. Nursing care behaviours perceived by parents of hospitalized children: a qualitative study. International Journal Paediatrics, 5 (7), 5379-5389.

Shields, L., Zhou, H., Pratt, J., Taylor, M., Hunter, J., Pascoe, E. 2012. Family-centred care for hospitalised children aged 0-12 years. Cochrane Database of Systematic Review, 17;10. doi: 10.1002/14651858.CD004811.pub3.

Toruner, E.K., Citak, E.A. 2013. Information-seeking behaviours and decision-making process of parents of children with cancer. European Journal of Oncology Nursing, 17, 176-183. doi: 10.1016/j.ejon.2012.03.001.

Vasli, P. & Salsali, M. 2014. Parents’ Participation in Taking Care of Hospitalized Children: A Concept Analysis with Hybrid Model. Iranian Journal of Nursing and Midwifery Research, 19(2).178.

Wong, P., Liamputtong, P., Koch, S. & Rawson, H. 2015. Families’ Experiences of Their Interactions with Staff In an Australian Intensive Care Unit (ICU): A Qualitative Study. Intensive & critical care nursing. The official journal of the British Association of Critical Care Nurses, 31(1): 51–63. doi: 10.1016/j.iccn.2014.06.005

Wulandari, A. 2011. Persepsi Perawat Terhadap Pelibatan Keluarga Dalam Perawatan Anak di Rumah Sakit PMI Bogor. Tesis. Fakultas Keperawatan Universitas Indonesia, Jakarta

Article Statistic

Abstract view : 148 times
Fulltext (Bahasa Indonesia) views : 88 times

Dimensions Metrics

How To Cite This :


  • There are currently no refbacks.

Copyright (c) 2021 Dina Rasmita

Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.